May is Lupus Awareness Month, a month to increase public attention to lupus by providing others with information. And being as informed as we possibly can is one of the best ways to be empowered.
The old saying, “knowledge is power,” has endured simply because it is true. It is not only important to understand lupus symptoms and its development. It is also helpful to know about how lupus should be treated and monitored as well as how to create a lifestyle for yourself that is best suited for managing and coping with the disease. That’s quite a lot of information; if you go without it, you are denying yourself having all the tools you can get to manage your lupus and to keep yourself as healthy as possible, both physically and emotionally.
In order for knowledge to truly be powerful, it is important for that knowledge to be factually correct. The Internet is filled with a lot of information, some accurate, and unfortunately, some inaccurate. I always advise people to stick to information from the government, universities, hospitals, and reputable organizations that responsibly obtain their information from reliable sources. Here at the S.L.E. Lupus Foundation we work hard to provide top quality information to our patients both locally and across the globe. And we strongly encourage you to take this information to empower yourselves. You are your best advocate, as many of my support group members frequently say!
We have a growing library of free, Internet-based lectures from top lupus experts. Inviting friends and family to listen and watch with you is a great way to help them understand lupus, as well.
- Living Well, Despite Lupus: Listen Up, Doc! with author and blogger Sara Gorman
- Making Sense of Medications Used to Treat Lupus with Irene Blanco, MD
- En Español: Teniendo Sentido de los Medicamentos Usado para tardar Lupus
- Coping with Chronic Illness with Becky Hashim, PhD
- Lupus and Pregnancy with Jill Buyon, MD
- Benlysta – The FDA approved it, but is it right for me? with Richard Furie, MD
- Tools for Managing Your Lupus with Robin Dibner, MD
- Lupus and You: Your Body, Your Medications with Onome Whiteru, MD
- Bone Health and Lupus with Cindy Johnston, MD
- Lupus and the Heart with Maryann Lee, MD
- Lupus and Muscles and Joints with Stuart Green, MD
- Lupus and the Kidneys with Julie Schwartzman-Morris, MD & Anjali Acharya
- What Is Lupus and How Does It Affect the Body with Laura Geraldino-Pardilla, MD & Robert Winchester, MD
- Advances in the Treatment of Lupus and Clinical Research Opportunities for Patients with Lupus with Richard Furie, MD & with Laura Donohue, CCRC
June 3rd at 12pm
Labs and Lupus: What do they Mean?
with Beverly Johnson, MD
Upcoming Local Events
Tuesday, May 7th at 6pm
Skin Care, Weight Control and Feeling Good with Lupus
with Amanda Sammut, MD and Sharon Isaac, MS, CDN (Nutritionist)
Thursday, May 16th at 6pm
Lupus and the Effect of Medication
with Mona Pervil, MD
The NYC Poison Control Center: A Resource for Questions About your Medicines
with Luz Martinez
“Knowledge is power. Information is liberating. Education is the premise of progress, in every society, in every family.” – Kofi Annan, the seventh Secretary General of the United Nations, 2001 Noble Peace Prize Winner.
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