Lupus Links
The S.L.E. Lupus Foundation recommends the following websites as additional resources for lupus patients, friends, and family.
Government
Medical and Health Care Organizations
Other Lupus Organizations
New York City Hospitals
Other Useful Sites
Lupus Blogs
Government
- National Intitute of Health Clinical Research Trials
- National Institute of Health (PDF Fact Sheet on Lupus)
- ClinicalTrials.gov
- Healthfinder
- MEDLINEplus
- MEDLINEplus Lupus Patient Education Page
- National Center for Chronic Disease Prevention and Health Promotion CDC)
- National Center for Complementary and Alternative Medicine (NCCAM)
- National Institute of Allergy and Infectious Diseases (NIAID)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK)
- National Institutes of Health (NIH)
- The National Women’s Health Information Center
- News from the National Institutes of Health (NIH)
- Office of Research on Women’s Health
- Agency for Healthcare Research and Quality
Medical and Health Care Organizations
- American Academy of Allergy Asthma & Immunology
- American Academy of Dermatology
- The American Academy of Facial Plastic and Reconstructive Surgery
- American Autoimmune Related Diseases Association
- American College of Allergy, Asthma & Immunology
- American College of Rheumatology
- American Fibromyalgia Syndrome Association, Inc.
- American Medical Association
- Antiphospholipid Antibody Syndrome Foundation of America
- Arthritis Care (UK)
- Arthritis Foundation
- The Arthritis Society (Canada)
- Arthritis Daily
- Dermalogica: Skin Care System Researched and Developed by the International Dermal Institute
- Lupus, Lupus Treatment, Hughes Syndrome - The London Lupus Centre
- The Myositis Association
- National Fibromyalgia Association
- National Fibromyalgia Partnership
- National Osteoporosis Foundation
- National Pain Foundation
- National Sarcoidosis Resource Center
- Online Health Resources
- Raynaud’s & Scleroderma Association (UK)
- Scleroderma Foundation
- Sjogren’s Syndrome Foundation
- Society for Women’s Health Research
Other Lupus Organizations
- Lupus Europe
- Lupus Alliance of America
- Lupus Canada
- Lupus Foundation of America
- Lupus Foundation of America, Illinois Chapter
- Lupus Foundation of Colorado
- Lupus Foundation of New England
- Lupus Foundation of Northern California
- Lupus Foundation of Pennsylvania
- Lupus Research Institute
- Alliance for Lupus Research
- DxLupus
New York City Hospitals
- Bellevue Hospital Center
- Beth Israel Medical Center
- Columbia University Medical Center
- Hospital for Joint Diseases
- Hospital for Special Surgery
- Lenox Hill Hospital
- Metropolitan Hospital Center
- Montefiore Medical Center
- New York-Presbyterian
- New York University Medical Center
- North Shore-Long Island Jewish Health System
- Saint Luke’s-Roosevelt Hospital Center
- Saint Vincent Catholic Medical Centers
Other Useful Sites
- Administration on Aging
- Doctor certification information
- Doctor licensing information
- HealthScout
- American Heart Association
- Johns Hopkins University Welch Medical Library
- The University of California's Berkeley Wellness Letter
- Lupus UK
- Mayo Clinic
- Medicare Interactive
- Meals For You
- MedicineNet
- The Merck Manuals
- Rx List
- ABC’s of Melanoma
- WebMD
Lupus Blogs
More and more, people with lupus are writing personal online journals (“blogs”) about their experiences with the disease. Below are links to a number of these blogs currently on the World Wide Web. Note: The thoughts and feelings expressed on these sites do not represent the opinions or views of the S.L.E. Lupus Foundation.
Do you “blog” about life with lupus as well? Let us know! Email lstegmaier@lupusny.org to ask about sharing your site with us.
- 710.0: A Life With Lupus
- A Lupie Existence
- Adherent Cerebrations: Musings of a Lupus Survivor!
- The Adventures and Misadventures of One Miss Kelly P. Bergin
- But You Don’t Look Sick
- Bensfriends.org
- Cabo San Lupus
- Chronic Chick Talk
- Chroniclysilly
- College Life (And Beyond!) With Lupus
- Daily Living with Lupus
- Debra Freeman Highberger's Lupus Blog
- Deb's Life as a Lupus Runner
- Despite Lupus
- Diva With Lupus
- Diva With Lupus - Hair edition
- Erin in The Sky With Lupus
- Fifty Races in Fifty Places: Racing for the Lupus Cure
- Getting Closer to Myself
- Healing From Lupus
- Houswifing Around
- I am Lupiod
- I Can't Fit My Jeans
- It Was Lupus
- Jensblogpad — Lupus Awareness
- Kendra's Blog
- Keep Working, Girlfriend
- Knitting My Way Through
- LA Lupus Lady
- Laughing with Mr Lupus
- Life Despite Lupus
- Life, Interuppted
- Life, Love, Lupus, and the Grace to Fight It All
- Life, Lupus, and the Pursuit of Happiness
- Life of a 20-Something With Lupus
- Life - One Hour At a Time
- Lifestyles of the Ill and (mostly) Blameless
- Lion's Lemonade
- Living La Vida Lupus (Lisa)
- Living Lupie
- Living Well With Lupus
- Living With the Wolf
- Loopie Life
- Lupine Life
- Lupus, the Adventure Between the Lines
- Lupus Chronicles
- The Lupus Chronicles Plus
- A Lupie Life
- Lupie Love and Laughter
- Lupus Hope
- Lupus and Humor
- Lupus in Flight
- Lupus Interrupted
- Lupus and lupus-related illnesses' Journal
- Lupus from Day One
- Lupus Ranting
- Lupus Research News
- Lupus - So Now What ?
- Lupus, Um Blogue sobre a doenca
- Mommy, Please Don't Be Sick
- My Lupus Updates
- Not Your Average Lupus Site
- Sobre Vida y Mas
- Sometimes, it is Lupus
- Surviving Lupus
- Tengo Lupus
- Tiffany and Lupus
- What the Jules
- What Goes Up Must Come Down
- Where the Style Things Are
- The Wolf at My Door
- Wolves Ate My Kidneys