January 2009

What's New

Men Have Lupus, Too

And face unique physical and emotional challenges...

You’ve probably heard the numbers—nine out of 10 people with lupus are female. But if you’re a man that has been diagnosed with lupus, the numbers don’t really matter. Your lupus is just as difficult to live with as a woman’s.

Like many men with lupus, you may struggle with the idea that you have a “woman’s disease.” But even though many more women than men develop lupus, your diagnosis has no connection to your manliness.

What it does mean is that lupus information valuable to you may be harder to find.

This issue of The Cooperative Corner is a good place to turn first! Read more » 


Living with Lupus Q&A: Manny Roldano

Lupus in men isn't rare. In fact, there have been several high-profile men with lupus: former Major League Baseball outfielder Tim Raines, R&B singer Seal, Hip Hop artist J Dilla, and late CBS broadcaster Charles Kuralt. 

This month, we talk to Brooklynite Emmanual "Manny" Roldano, age 46, to get a local man’s perspective on living with lupus.

When were you diagnosed?
I was diagnosed with lupus in 1982. I had never heard of it before then.

More » 

The New York Bag Ladies Are Coming

This one is for you, ladies

Save Tuesday, April 21st, for the next great New York City lupus fundraiser. This exciting luncheon at The Metropolitan Club in Manhattan will feature a silent (but lively!) auction of beautiful designer and celebrity handbags as we present our “Woman of Achievement” Award to Meredith Vieira, co-host of NBC's Today ShowDetails » 


Want to Give Back to the NYC Lupus Community?

Our tireless Social Services Director, Danielle Hall, and staff members are creating new ways for you to help us help people with lupus through hard times. 

Give Winter Necessities: Bring gently used clothing and nonperishable food items that women and children with lupus living in East Harlem, Brooklyn and the Bronx might get use out of (we'll also take toys for the kids if you have some to pass on!). Donations accepted through Thursday, February 19th at the Foundation's midtown offices at 330 Seventh Avenue and 29th Street, Suite 1701. Please call ahead to schedule a drop-off time, 212-685-4118.

Volunteer! There are three ways: help out at our neighborhood centers, pitch in at fundraisers, or assist with patient programs. Whether you can give a few hours each week, or a few days here and there, we can always use your help! Email Danielle Hall at dhall@lupusny.org or call 212-685-4118 to discuss your options.


New Lupus Cooperative of New York Walk-In Hours 

If you live in Northern Manhattan, Brooklyn or the Bronx, you don't always need an appointment to talk with a lupus counselor in your neighborhood. Stop by our outreach offices at these times each week to learn more about our community-based support services:

Northern Manhattan: Thursdays from 11am-3:30pm
2253 Third Avenue, 4th Floor

Bronx: Fridays 11am-3:30pm
1070 Southern Boulevard, 1st Floor

Brooklyn: Wednesdays 11am-3pm
161 Ashland Place (lower level)


S.L.E. Lupus Foundation