April 2009

What's New

Have You Seen the Ad Council’s “Could I Have Lupus?” Campaign?

We partnered with the U.S. Department of Health and Human Services’ Office on Women’s Health to get real-life “diary” stories of young women with lupus and shape the message that’s starting to appear nationwide on buses and trains, television and radio, billboards and Web sites, and other venues.

Check it out and tell us what you think on Facebook!

The campaign’s goal: to capture the attention of young women who are unaware that the symptoms they are experiencing may be those of lupus, and that they should pose the question to their doctors: “Could I have lupus?” 

The Web site [www.couldihavelupus.gov], and a toll-free number [800-994-9662] direct people looking for services and more information to specialists and local resources.


As Foundation Executive Director, Margaret Dowd, said in her speech at the launch of the campaign in Washington, D.C., on March 31st, “this campaign is a long-needed breakthrough to raise awareness about lupus. And now our job is to ensure that women who ask that key question—‘Could I Have Lupus?’—are answered by physicians and health care providers with a solid understanding of the disease, who know when to say: “You could have lupus. Let’s check it out.” 

Foundation lupus advocate Heide Wilson also spoke at the D.C. launch event, telling her story of living with lupus. You can read about her in our latest “Living with Lupus” interview.   


Are You Holding On to Your Purse? The Bag Ladies Are Coming to New York!

Join us at our inaugural New York Bag Ladies Luncheon on Tuesday, April 21st, at the Metropolitan Club in midtown to raise funds and awareness for lupus—in style!

The silent auction of bags from celebrities and designers starts at 11:30.

At lunch, which starts at 12:30 (to 2 pm), we’ll honor Today Show host Meredith Vieira and present a public service award to the Ad Council and the HHS Office on Women’s Health for the new “Could I Have Lupus?” campaign. (Ad Council President and CEO, Peggy Conlon, and Office on Women’s Health Deputy Director, Frances Ashe-Goins, will be there to accept the awards.)

We can't wait to see which of the bags draw the high bids!

For tickets, call us at 212-685-4118 or purchase online.

Did You Know? May is the new “Lupus Awareness Month” in New York State!

Live near Albany? Stop by!

Lupus Awareness Day in the NY State Capital
Tuesday, May 5th
8:30am - 2:00pm at the Legislative Office Building in Albany

Things Happening Around Manhattan:

Workshop on Nutrition & Healthy Cooking for Chronic Disease
Wednesday, April 15th

6:00 – 7:30pm at our headquarters in Manhattan
330 Seventh Avenue (at 29th Street), Suite 1701 

Living Life Healthy with Lupus: Looking and Feeling Good
Saturday, May 23rd

11am – 3pm at the Hospital for Special Surgery

Learn more about living a healthy lifestyle with lupus with an afternoon of free mini workshops and demonstrations focused on looking and feeling your best. Bring a family member or friend to share in an afternoon of beauty. There will be a nutritionist and massage demonstrations, presentations on sun protection, hair, makeup, and more.

Registration is limited. RSVP by May 15th at 212-685-4118 or email your name and phone number to sresto@lupusny.org

Stay tuned for more Lupus Awareness Month news and events!


Want to Support Lupus Research?

Spring 2009 Cash Raffle

Grand Prize: $10,000 | Second Prize: $1,000*
*$1,000 each for 3 winners


Buy your tickets today and help us get closer to the cure. Tell your friends, family and co-workers. 

If you buy 4 tickets before May 15th, you’ll get 1 free! Plus, the top ticket seller wins two tickets to the Foundation’s Gala on December 7th.  

Purchase Raffle Tickets

Total prize money awarded will be reduced proportionately if fewer than 1,750 tickets are sold.


Challenge of a Lifetime for Lupus Research

Chris Paradysz has been training since last summer, and this month he’ll put himself to the test. It’s the Ride for a Life Without Lupus—a daunting attempt to bike for 24 record-breaking hours—without stopping!—at the Valley Preferred Cycling Center in Pennsylvania. He’ll start at 12pm on Saturday, April 25th and won’t finish until he’s pedaled his way to a record 396 miles or more.

Chris is giving his all to help find a cure. With your support, he’ll break the record and, more importantly, raise critical research funds. Show that you’re behind him with a donation!

Make your pledge at www.LifeWithoutLupus.org, where you’ll also be able to view the entire ride live via webcam!

S.L.E. Lupus Foundation