August 2009

What's New

The Runners Are Getting Ready—Are You?

Our TEAM LIFE WITHOUT LUPUS revs up for the 2009 ING New York City Marathon just over two months away (November 1st!)

It’s the first lupus charity team in the world’s most watched marathon!

We have: 27 runners who’ve pledged strength, courage and commitment to the fight against lupus in a 26.3 mile-run.

They’re aiming for: $100,000 to fund groundbreaking research to find new treatments and new answers for lupus…a cure!

Did you know you can help—even if your lungs and legs aren’t marathon-strength!? Visit and give support (financial or otherwise) on the runners’ inspiring personal fundraising pages or make a general team donation here.

What else you can do…on Marathon Weekend:
* meet up at locations along the route to cheer on our runners!
* volunteer – we need you! Sign up here.

Add Your Question to the Mix on the Success of Benlysta™

Questions about this first Phase 3 lupus drug trial in decades to show effectiveness are still streaming in to our offices.

Do you have one too?

Check out the latest here or email us at


Knowledge is Power…So Get Powerful Over Lupus

Come to one or more of these expert lupus talks at our 2009 Hospital Tour

The 5th Annual “Get into the Loop” New York City Hospital Tour visits each borough and packs knowledge into each stop!

September 22nd in Manhattan: Robert Spiera, MD, of Mt. Sinai Medical Center talks about “Lupus and Women’s Health.”

September 30th in Brooklyn: Ellen Ginzler, MD, of SUNY Downstate Medical Center talks about "Lupus and Kidney Function.”

October 14th in Queens: Beth Gottlieb, MD, MS, of Schneider Children’s Hospital (LIJ) talks about “Growing Up with Lupus.”

Save these dates and stay tuned to for more details, including our stops at Bronx Lebanon Hospital Center and Staten Island University Hospital. 


See the Play Breathe: A Story about Life Overcoming Lupus

Written and acted by our tireless and talented supporter, Jill Kuirsky.

A percentage of ticket sale proceeds support the S.L.E. Lupus Foundation!

About Jill: She’s had lupus for more than half her life, but it hasn’t stopped her from pursuing her dream to be a performer. Read more about Jill’s incredible story here.

About Breathe: The play movingly depicts Jill’s remarkable and inspiring struggle with lupus. Read more about it here:

Where: Breathe debuts at August’s New York International Fringe Festival at the New School Theater - 151 Banks St (West & Washington)

When: Five performances on the following dates. Click link to purchase tickets.  

Friday 8/14 at 7:30pm
Sunday 8/16 at 12pm
Saturday 8/22 at 5:30pm
Sunday 8/23 at 4:30pm
Wednesday 8/26 at 7:30pm


A Special THANKS to All of You Who Have Helped to Make It Happen


Lupus Week at Camp Sunshine!
Summer 2009

As you read this, 40 New York City families with lupus are gearing up for a very special week on the shores of Lake Sebago in Maine. 

Can you hear them getting ready?

“Where’s the sunblock, Mom?”
“Does this bathing suit still fit?”
“Will my friends be there again this year?”

Lupus Week is a powerful chance for everyone—kids, siblings, parents—as families who struggle with lupus all the other months of the year get a break to  rest, play, connect, and get support from expert counselors on living with lupus. 

If you can hear them getting ready, let them know! Secure a Camp Sunshine spot for a family for $1,500 (or portion thereof) with an online donation.

Stay tuned to for pics as we get them throughout the camp week—August 16th through August 21st!