LRI and ALR Applaud 21st Century Cures Act and Stress Patient Priorities

The LRI and ALR applaud the House Committee on Energy and Commerce on their yearlong effort to explore how to accelerate the discovery, development, and delivery cycle of life-changing medical treatments and the recent release of the third draft of the 21st Century Cures Act*.  Writing on behalf of the national lupus community, the two organizations submitted this letter urging Congress to consider the following priorities for people with lupus and all patients when the Committee meets May 14:

  • Strengthen NIH biomedical research programs
  • Support measures to enhance the numbers and conduct of clinical trials
  • Integrate greater -- and meaningful -- patient participation at all stages of the research and drug approval processes, including representative levels of women and minorities
  • Provide incentives to foster more clinical research, networks and clinical trials; accelerate drug discovery; and allow innovation to develop safe and effective drugs

Watch for updates on how this important legislation affects people with lupus!

*Follow #Cures2015 on Twitter and Facebook for updates and news about the 21st Century Cures Act.