Make your Voices' Heard on Lupus legislation in NYS and help to get these critical lupus program bills passed this year!

You Can Make a Difference in Albany

Dear NYS Lupus Community-

Make your Voices' Heard on Lupus legislation in New York State and help get these critical lupus program bills passed this year!

The following bills are being reviewed by the Ways & Means Committee in the NYS Assembly and the Finance Committee of the NYS Senate. You can help get them passed by contacting as many as you have time for either by phone or email.

Two Key Lupus Bills

1. Lupus Education and Outreach Bill - Creates an education and outreach program for the autoimmune disease known as lupus; provides for an advisory council consisting of representatives of people with lupus and their families and health care providers who specialize in treating lupus.

  • Assembly Bill A03072 is in the Assembly Ways & Means Committee
  • Senate Bill S05216 is in the Senate Finance Committee

2. Taxpayer Gifts Bill - Provides for taxpayer gifts for lupus education and prevention, and establishes the lupus education and prevention fund and outreach program.

  • Senate Bill S00553 is in the Senate Finance Committee
  • Assembly Bill A02581 has passed in the Assembly, this Bill provides for a taxpayer check-off to establish voluntary donations to help fund lupus education/prevention/outreach programs.

What you can do – Phone or Email Legislators in the Assembly and Senate

For Bills in the Assembly

Email or phone your Assembly Member – find them here. "My name is {     } I live in Assembly Member {     }’s district and I have lupus. Please support Bill A03072, the Lupus Education and Outreach Bill, when it comes up for a vote. Thank you."

Email or phone as many members of the Assembly Ways & Means Committee as you have time for. "My name is {     } and I am active in the lupus community. I would like for Assembly Member {Committee Member Name} to please support Bill A03072, the Lupus Education and Outreach Bill. Thank you."

For Bills in the Senate

Email or phone your Senator – find him/her here. "My name is {     } I live in Senator {     }’s district and I have lupus. Please support two pieces of legislation that can help people with this autoimmune disease -- Bill S05216, the Lupus Education and Outreach Bill, and Bill S00553, the Taxpayer Gifts Bill, when they come up for a vote. Thank you."

Email or phone as many members of the Senate Finance Committee as you have time for. "My name is {     } and I am active in the lupus community. I would like for Senator {Committee Member Name} to please support S05216, the Lupus Education and Outreach Bill, and Bill S00553, the Taxpayer Gifts Bill.  Thank you."

Please don’t feel you have to contact all of the many members of the Assembly Ways & Means Committee and the Senate Finance Committee  -- Call or email as many as you can and know that every contact you make helps let our legislators know that their decision matters greatly to their constituents.

Use hashtags: #LupusAwarenessNY2016 and #PassLupusBills

Thanks for your help!