About Lupus

Jessica’s Coping with Lupus Corner


The Coping with Lupus Corner is a monthly column giving the low-down on living with lupus. Our Director of Social Services, Jessica Rowshandel, M.S.W., picks topics based on questions from clients and visitors to our website, comments on our Facebook page, and information she finds helpful.

Check back each month for new ideas and suggestions!

October 2014
Volunteering is a great way to get involved in the lupus community. One of the best ways to volunteer is to take part in a lupus clinical trial....
September 2014
A few months ago, I came across a Facebook post stating that a major U.S. hospital (Johns Hopkins) released information on the “truth”...
August 2014
Grief is Normal and Expected
July 2014
Undoubtedly living with lupus has many challenges. Everyday Living with Lupus: Be Proactive is a webinar that helps you learn the steps you can take...
June 2014
Lupus flares are disruptive and affect many different aspects of a person’s life. There are needs, large and small, that do not disappear....
May 2014
What is your favorite photograph? It is your favorite for a reason. Something about it stayed with you long after you first discovered it. That...
April 2014
April is National Poetry Month. This is a column about coping with lupus.  To me, the connection is clear -- poetry can help people cope. The...
March 2014
At least one in three people with lupus develop kidney disease. March is National Kidney Month so I wanted to take the opportunity to stress the...
February 2014
February is American Heart Month. Heart disease is a big health issue for everyone, even for people without lupus. But when you have lupus, you have...
January 2014
Every January, many of us make New Year’s resolutions. We look back on the previous year and ahead, resolved to make positive change in our...
December 2013
Last year around this time, I wrote about how to maintain good health during this season full of added demands. This year, I’d like to add to...
November 2013
What is an autoimmune disease? How are biologics different from other medication used to treat lupus? What is the difference between lupus and...
October 2013
As we all know, adolescence is one of the most difficult stages in life, and lupus can complicate things. This is a time where the importance of...
September 2013
For children and their parents, the back-to-school season can be both exciting and stressful. But for many parents of children with chronic illnesses...
August 2013
Earlier this year the New York Times published an article called Living with Cancer: The Good Patient Syndrome, which we read together and discussed...
July 2013
Summer is here. This might be exciting for many as they venture from their couches and desks to run to the beach or a walk in the park, but for...
June 2013
May was Lupus Awareness Month, and I wrote about self-empowerment through obtaining knowledge and information. We since hosted a webinar called Labs...
May 2013
May is Lupus Awareness Month, a month to increase public attention to lupus by providing others with information. And being as informed as we...
April 2013
As I write this on April 1st, I am getting a lot of good laughs from all of the April Fool's jokes I am seeing. For example, a great goof was that...
March 2013
As we all know, sleep is important to our emotional and physical health. It’s a time to re-boot, refreshing our minds and our bodies to wake up...
February 2013
Valentine’s Day is here.  It’s a day to pause and reflect on relationships of all kinds, including those with our doctors.
January 2013
To help people with lupus keep track of your health, the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) has...
December 2012
How is your holiday season going? Maybe okay, maybe not so okay. Yes, the winter festivities are supposed to be the most joyous time of year. But...
November 2012
Did you know that the U.S. Surgeon General declared Thanksgiving to be National Family History Day? Thanksgiving, or other times when families get...
October 2012
Always Learning About Lupus Every year, our five-borough Hospital Tour is one of the most popular events, bringing experts in lupus care to speak...
September 2012
Here at the S.L.E. Lupus Foundation we are preparing for our annual Hospital Tour patient-education series where we facilitate a presentation by a...
August 2012
I get a lot of phone calls from people with lupus about medication. Many are worried about side effects, or simply want to better understand what has...
July 2012
Most people would agree that they could use a good massage. But for people with lupus, massage therapy may be an effective complementary treatment...
June 2012
In honor of Father’s Day, I’d like to recognize another set of men particularly important to us in the lupus community: the 10% of people...
May 2012
As you might know by now, May is Lupus Awareness Month and May 10th was World Lupus Day. Halfway into May, there is still so much you can do to raise...
April 2012
Having a job and having lupus can sometimes feel like two opposing forces. People who don’t know much about lupus may have a hard time...
March 2012
I often hear from people with lupus about the frustration that comes with not being able to do the things you were once able to before symptoms...
February 2012
Though Valentine’s Day has come and gone, lots of red and heart reminders still abound. The minute the calendar turned to February, we have...
January 2012
It's the start of a new year and with that comes a whole new set of resolutions. What are your resolutions this year? What were they in the past?...
November 2011
It’s the end of the year and November and December mark our season of giving thanks. Giving thanks is as important for our overall happiness...
October 2011
A recent post on our Facebook page inspired me so much that I want to revisit the topic of dating with lupus or any chronic debilitating disease....
August 2011
Usually my column answers questions that you readers write in. But this month, I’d like to point out how two policy changes are helping lupus...
May 2011
Dear Jessica, Do you have any tips for staying healthy—or coping with lupus problems—while traveling overseas? –R.O. Dear R.O.,...
April 2011
Instead of answering a question from one of you in my “Dear Jessica” column this time, I’d like to take a look together at the...
March 2011
Dear Jessica, I feel a huge sense of loss because of lupus “brain fog.” I feel that the fog is getting worse and I am finding it hard to...
March 2011
Dear Jessica, I tell the doctors how I feel and they look at me like I am lying, and it’s so depressing. I need to find a doctor who knows...
February 2011
Dear Jessica, How can I get help in my area? I have no help or support from my doctor anymore. I just hate where I am in my life and how things are...
January 2011
Dear Jessica, I need help explaining what lupus fatigue feels like to my family and friends. Sometimes they think I’m just being lazy. Do you...