New Hope: Join the Winning Team in Lupus Research and Advocacy
We need you on our side — the side of success in research and advocacy! The S.L.E. Lupus Foundation together with the LRI National Coalition of patient advocates throughout the country continue to overcome what others find insurmountable.
To help us keep pushing forward:
Get the Word Out
Use our automatic online tool to illuminate the issues and tell legislators to allocate funding to:
Protect the Research
Innovation is at stake! Budget cuts threaten research funded by the National Institutes of Health — research needed to turn LRI’s breakthroughs into new drugs for lupus.
Use this tool to help educate Congress — we must prevent the Golden Age of Lupus Research from reverting back to the Dark Ages! Go ›
Improve Lupus Diagnosis – Educate Healthcare Professionals
Improving lupus diagnosis and reducing racial disparities is imminent as the Lupus Initiative rolls out May 16. The materials to educate medical students and train healthcare professionals are ready to go. But we need more funding to ensure that every provider receives this training and every patient who has lupus is diagnosed.
Use this tool to tell Congress we must educate our doctors and nurses to ask the question – Could this be lupus? Go ›
Join the Congressional Lupus Caucus
Over a decade of knocking on the doors of Congress opened the way for an interest in lupus at the federal level and the creation of the Congressional Lupus Caucus.
Use this tool to urge your Senators and Representatives to join this growing group of legislators who care about lupus. Go ›
Persuade Others to Care
Listen to top experts in lupus speak about why we should all care about lupus: at a recent Congressional briefing co-hosted by the LRI — then use their arguments to persuade others:
Dr. Robert Katz powerfully conveyed how this prototypical autoimmune disease impacts lives, sharing his personal experience treating hundreds of patients at Rush University Medical Center and Northwestern Memorial Hospital in Chicago. Watch the video ›
Dr. Mary Crow of the Hospital for Special Surgery in NY noted, “We must protect the invaluable progress of lupus research over the last decade and cannot lose ground at this pivotal juncture when solutions to this confounding disease are finally within reach.” Watch the video ›
Dr. Betty Diamond of The Feinstein Institute for Medical Research and Albert Einstein College of Medicine in NY documented the need to educate healthcare professionals and the lupus community about the nature and extent of racial disparities in lupus. “If patients of all ethnicities and races have the opportunity to participate in clinical trials, we will have the data we need to deliver new treatment options more quickly.” Watch the video ›
Generate Public Awareness of Lupus
Lupus Awareness Month is the ideal time to educate others about the disease. When you explain, “I have lupus,” wouldn’t it be amazing to be greeted by nods of understanding instead of blank stares?
Ways to consider raising awareness:
- Participate in the World Lupus Day Flash Mob
Stay in the Loop
Get our e-newsletter sent to your email inbox every month and stay on top of the latest in lupus discoveries, breaking news, and ways to get involved.
Knowledge is power! Knowing all you can about lupus can help. In celebration of Lupus Awareness Month in May, we have even more educational programs than usual. Bring someone with you and share the information. Check it out!
- Get Into the Loop – Attend the 2013 NYC Hospital Tour to learn from lupus experts
- Join the upcoming Facebook chat led by healthcare professionals from the S.L.E. Lupus Foundation and New York’s Hospital for Special Surgery. Check our Facebook page for details.
- Get your daily dose! Visit our Facebook page to learn a lupus fact or tip every day in May. Share with friends and family to help them better understand lupus and how it affects you.
The S.L.E. Lupus Foundation is here to help you through a diagnosis of lupus. We offer support services and educational programs. Here are some practical tips for living with lupus.
- Visit Jessica’s Coping with Lupus Corner.
- Attend our support groups led by a health professional. There are several to choose from in Manhattan, Brooklyn or the Bronx.
- Share experiences with others facing similar challenges. Join our Facebook Family at http://www.facebook.com/LupusNY
Donate to Research and Advocacy
Your donations to the S.L.E. Lupus Foundation allow us to provide services to help people live with lupus while we fund the science that will bring Life Without Lupus.
As a nonprofit organization [a 501(c)(3)], all contributions to the S.L.E. Lupus Foundation are tax-deductible to the fullest extent of the law. The tax ID for the Lupus Research Institute is ID #13-3060086.
If you would like to make a recurring donation or include the S.L.E. Lupus Foundation in your will, please contact us at 212.812.9881. Donate online ›
Consider Clinical Trials
Clinical trial research to test potential new drugs and diagnostic tests is essential for safer and more effective new treatments. Participation in a trial gives patients access to excellent care and new treatments in development. Visit LupusTrials.org to learn more about clinical trials and see if one might be right for you.