LRI Coalition Advocacy Gains $2 Million in New Congressional Appropriations to Improve Lupus Diagnosis and Treatment

Brings Total to $6.6 Million to Educate Healthcare Professionals on Front-Lines of Care

The 2014 Omnibus Appropriations Bill released by the U.S. Congress last night provides $2 million to further the Lupus Initiative, the lupus provider education program conceived by the Lupus Research Institute (LRI) in collaboration with the federal government. Expected to pass this week, the appropriation will bring total support to $6.6 million for the LRI’s signature advocacy program initiated to meet the urgent need for better lupus care, particularly among underserved populations.

The new bill allocates funding to the Department of Health and Human Services to integrate the Lupus Initiative into the national healthcare system. Managed by the American College of Rheumatology, the Lupus Initiative was officially launched in 2013 by the Office of Minority Health, Office of Women’s Health and the U.S. Surgeon General to improve diagnosis and reduce health disparities. As described in the report language accompanying the bill, the funding is “intended to engage healthcare professionals, educators, and schools of health professions in working together to improve lupus diagnosis and treatment through education.”

“Lupus remains dangerously undiagnosed, underdiagnosed and misdiagnosed, especially in our minority communities,” noted LRI CEO Margaret Dowd. “Our LRI patient advocates across America thank Congress for appropriating funds to train healthcare professionals, especially those on the front-lines, to spot this complex autoimmune disease early so patients can get appropriate care promptly.”

Protecting Research in Lupus and Other Devastating Diseases

The bill also provides $29.9 billion to fund biomedical research at the National Institutes of Health (NIH).

“Congress listened to the LRI and the many other organizations seeking to support our national biomedical research investment. We appreciate that in a very tight budgetary environment, Congress responded to protect the science and advance lupus research,” noted Ms. Dowd. “Stopping the deep cuts in NIH funding begins to address the amounts that have been lost to the budget sequestration process. The renewed commitment to scientific discovery is hopeful for our lupus patient advocates who worked hard to voice that need to their federal representatives. The LRI is proud to have made a difference.”